Bone Marrow--things I've learned

Hi it's Tara, Zena's Mom!!! I'm taking over her blog to hopefully educate some people and also spread the word about a bone marrow clinic going on tomorrow downtown.

Recently, I was on Craigs List and came across a post looking for help in planning out a charity event so I e-mailed the person and offered any assistance that I could give.

Come to find out this person was trying to put together a charity event to raise money for a family who's little boy is sick with a rare congenital disorder called Osteopetrosis.

This little boy needs a bone marrow transplant and the family has to travel to the University of Minnesota Amplatz Children's Hospital more than a few times.

I had no idea that a disorder could make you in need of a bone marrow transplant, I always thought that it was only cancer that was needed for. Well, you learn something new everyday.


This little boy's family keeps a blog going on all the details going on in his life and if you are interested in learning more go to: http://www.caringbridge.org/visit/josephparthenais

From reading the blog I found out that to be listed in the bone marrow registry it could cost upwards of $100 or more to get tested through your regular doctor & insurance does not cover the test.

This is a great opportunity for anyone wanting to be tested. It's a swab in the mouth test so NO NEEDLES!!!! See details below, I'm going to get tested!!!!

There is no obligation to go, but I wanted to share it with everyone in case someone would like to do this.

Monroe Community College is hosting a free Bone Marrow Drive. It will be held on Wednesday November 4th from 10am - 3pm @ the downtown campus (Old Sibley's Building) & 10am - 4pm @ the Brighton campus. They are asking for a $1 donation per person. I have listed the information below. If you are tested, you will be enterted into the "Be a Match Registry". This is the registry used to find matches for people requiring bone marrow transplants, just like Joseph. It is a saliva swab that is used, so no needles!

Parking can be difficult, so be sure to bring quarters for parking meters, if you plan to attend.

Thank you for listening!!!

Tara